Showing posts with label physical medicine. Show all posts
Showing posts with label physical medicine. Show all posts

Friday, July 23, 2010

The Road Ahead is...

Good Morning everybody. Its Friday!! After a Traumatic Brain Injury (TBI) everything becomes harder. If you are a TBI survivor you know what I mean. Not been as effective, efficient or functional as we use to be, can be frustrating. If you know anybody that recently had a brain injury please relay this to them. IT DOES GET BETTER!!!
I am experiencing what the doctors call lingering effects from a brain injury. I can tell you all that even that's taking me longer than the average brain injured person, the recovery is steady. Once a symptom is resolved normally it has resolved for GOOD. The recovery has been steady. Some things take longer than others but today I can say, ALL is getting better. The emotional issues start to resolve, you will notice it right away, you will start to feel better. I have been thru it.
The road ahead is not easy, but really, who said that reaching goals was going to be easy. Like most achievements in life, recovery takes hard work and dedication. Treatment is given to you, but you have to get as much from it as you can. With the right guidance and treatment from my therapists I have been able to make improvement and succeed. Treatment doesn't end at the rehab center. It takes a lot of work at home. If I decide to stay on the couch and feel sorry for myself then nothing will get accomplished. Aside from the BI, let's say I want to loose weight or perhaps find a job, any of these requires me to get up and do something for myself. Well, so is the brain injury. We have to get up, go, and get it. You will get as better as you want to.
My message to you today is: THE ROAD OF RECOVERY IS NOT EASY. ONLY YOU HOLD THE KEY TO YOUR SUCCESS. GET UP AND STAND TALL. THIS IS NOT THE END. THE END IS FAR FROM HERE. BRING YOURSELF TOGETHER AND WALK.
Have a good weekend everyone.

Wednesday, July 21, 2010

Could I ever do anything right?

Ahhhh, where to start? So many thoughts rushing thru my head right now. As I sit here in Starbucks drinking a green tea frapuccino trying to get my thoughts lined up. It is so frustrating to see and feel that anything I do in regards to my responsibilities as a family man, I do wrong. In rehabilitation I do everything right and I put all my effort in doing it right and successfully. What I'm I missing when doing regular life things? I know that is not emotional. What could it be that I'm missing? I have a supportive and loving wife. I have a great support network. But it seems that I keep making the same mistakes that end up in things being messed up. Could it be attention issues? I don't know.
The path to recover from a brain injury is tough. To many things to figure out. To many things that will never be the same. Plus, I know I will never be the same.
Yes, I'm having a sad moment. Not depressed. Just sad. I understand that everybody gets sad and everybody have issues. But it seems that what I used to do naturally I now have to put extra effort to accomplish it. Could it be the impulsivity? I don't know. As I keep messing things up, it takes a toll on my family life. Even though I have an angel as a wife, yes, Roxana is an angel, and I know she tries her hardest to understand sometimes I know she gets frustrated and upset. It's hard for her to see that I'm a changed man after the injury. I do recognize is as hard for her as it is for me, and at times it might be even harder for her.
I just received a very supportive email from a very good friend as I was writing this. That email filled me with joy as it brought a smile to my face. Thank you Mercy.
I understand the emotional stages of healing. This might be part of them.
Please if anybody has any words of advice on how to cope with this, it will be greatly appreciated. Please send the to tbiwarriors@hotmail.com. I will post them here. Thank you all for listening. Big hugs to all.

A Hot July Day In My Life

I take this opportunity to share how a regular day for me is. Well, after waking up yesterday morning, drinking coffee, and get ready to go to Mentis I remembered that I had to take a few pills to Mentis. I owed them this medication because during the past month I forgot to take the medication at home. They kindly provided the meds for me. One of the medication is for attention, I don't rely on my wife to remind me about the meds. If I forget I'll pay the price. I got to tell you that whenever I forget my attention medication I can't focus on nothing. Others claim that I don't listen to them or that I just simply wander off. This happens involutarily and sometimes I notice but if I forget that medication I can't focus, not even to safe my own life. I wish somebody takes video of me being like that. Honestly that has to look funny. So, coming back to me having to take those pills back to Mentis, the good thing was that I remembered that I had to take them back. I put them on a ziploc bag and placed them on top of the counter while I drank some water.
Immediately after I drank my water I was ready to hit the road. So, I went to the garage and got my truck started for it to warm up. It was about 90 degrees yesterday morning. So there was not much warming the truck had to do. So there I was finally ready to be on my way. I got in my Toyota Tacoma and was on my way to Mentis.
Enroute, I made a phone call to my mom. We talked for about 10 minutes. Every time I'm behind the wheel I'm either talking to Roxana or to mom. After I hung up with her I thought about the meds. Where were they? Yes, I know, they were on top of the counter at the house. Well, that mission didn't get accomplish, it'll be next time I guess. I got to Mentis and proceeded to start my day with Physical Therapy. Jimmy made me do a work out yesterday. We started with the regular vestibular exercises and we moved on to something like push ups, ball throwing, and a home made obstacle course in which I had to jump over objects. We finished with stair exercises. All exercises were modified to focus on balance by Jimmy. It was an outstanding session.
During occupational therapy we played a game called PayDay. Raquel, the occupational therapist wanted to focus on attention and multitasking skills. I had to maintain track of all the loans taken by the players along with me being a player too. I didn't win but it was a fun and great game.
During the speech therapy, we worked on deducting reasoning. Vanessa wanted us to solve logic puzzles as the therapy exercise. The puzzles can be obtained from www.printable-puzzles.com. This puzzles are like a matrix with different variables. The goal is to be able to match the variables together. The puzzle gives some clues that are very clear to deduct, others require more thought process to determine the match. I was able to complete the level 4 puzzle. Yeah, amazing accomplishment.
At the second speech therapy, this time with Claudia, it was all fluency. Yes, very tiring. We worked on conversation and phrases, and reading. I have to tell you that my reading has improved a lot. My fluency problem is that I know in my head exactly how the word sounds but when I speak it doesn't come out as clear as I thought it. At the end of the therapy we worked on applying fluency strategies while walking (multi-task). When applying the fluency strategies is hard for me to raise the volume of my voice. In order to engage this problem Claudia and I did an exercise in which we started having a conversation standing 5 feet apart for a while. The we expanded the distance from each other to 15 and 20 feet. This was is a little hard because if Claudia can't understand what I'm saying she'll make me repeat it until she understands. Sometimes she even closes her eyes to avoid reading my lips. If she can't understand I have to repeat until she clearly understands. Yet, this was a very productive session.
After this session I had another speech therapy with Vanessa. This time it was a full hour of doing a level 5 logic puzzle. It was hard. I worked on it but I made a mistake at one point and couldn't keep going. I love those puzzles. So, I took that same puzzle home to work on it. I solved it last night with just one mistake. Yeah!!!
When I got to the house after Mentis, Roxana was waiting on me. Apparently I was not paying attention and I walked past her without acknowledging her. She got upset but it was all good after that. Sometimes that happens, unintentionally not paying attention to my surrounding. So, I started working on this blog posting. It took me last night about five hours and a couple of hours this morning. Before going to bed last night we did the logic puzzle that I didn't finish during therapy. Like I said I was able to finish it.
So, this was my day.
Just making a quick highlight: I'm getting better!!! Awesome!!!
Thanks for your support.

Tuesday, July 20, 2010

Key #5: Education and Awareness

Education and awareness plays a big role on a successful recovery and rehabilitation. For those of us that suffered the so called "mild" Traumatic Brain Injury it is our responsibility to get educated. I did this once I understood the "lack of initiative" issue. As I accepted this issue I worked to get over it. Even though this is a present issue for other things, I was the one, along with my wife Roxana, that became education hungry. My wife started reading books to me, we started watching videos, and seeking knowledge through my providers and the internet. Sometimes I had to network with people that have nothing to do with the military. All this together gave me a general knowledge about Traumatic Brain Injury. When I was wounded I had absolutely no idea what TBI was.
Seeking information helped me understand the causes of what I was and still experiencing. Brain Injuries brings with it some cognitive impairments but that is not an excuse for somebody not to learn. You have to find what works for you in terms of receiving education. There are so many ways to get educated. If you have a reading and comprehension problem then use videos or audio versions of the books, sometime you can even find video lectures online. Remember when you become educated on your condition you will get answers to many of your questions.
As you may know with this type of injury comes an emotional side effect. An emotional effect that many times could be mistaken for PTSD, but many of the emotional issues I have faced are non combat related, the symptoms are more related to the effect of Traumatic Brain Injury, symptoms that are caused by the fact that I try to be how I was and I can't, I try to do the executive skill like I use to and I can't, try to exercise the way I use to and I can't, among others like grieving, loss, and "mourn". Through education on my condition I learned about this and understanding the symptoms created coping strategies, and relieved most of them. I learned that I'm not alone and that is common to feel an emotional effect after a BI.
Many other frustrations where relieved after learning about BI. I read and was taught by my providers about other TBI problems. For example, Jimmy and Tessa, my physical therapists, explained in detail why balance, motor skills and coordination get affected. My speech therapist, Claudia and Vanessa explained to me why and how my speech fluency was affected along with the cognitive areas like concentration and attention. Dr. (COL) Richard Petri and Eric Spier, my physiatrists, explained to me the overall impact of the injury and they explained what to expect after the injury.
Putting older post together it show how the support network ties with education. In part is the providers responsibility to educate the patients, but do not forget that you are in control of your own rehab. Take initiative and learn about traumatic brain injury regardless of the means you use. Many times providers are blamed for the recovery failures but as you are a crucial part of your recovery, don't make the mistake of failing yourself.
Learn: Empowerment comes with knowledge, only you hold that key.

Monday, July 19, 2010

Key #4: Support Network

I hope everybody had a wonderful weekend. I did have a great one. Spent time with many friends and family. The things I will mention are based on my personal experience.
I said that I spent time with family and friends this past weekend. A key to success in my opinion is having a positive support network. It is life changing to know that I have shoulders to lean on, ears to listen to me, and many people that give advice, encouragement and motivation. Within the support network the most important piece is the family. Most of us live with a spouse, mother, father, sons, daughters, among many other relatives. This are the people we have access to on a daily basis. It is as important for them to understand the TBI condition as it is important for us to facilitate the education to them. After a brain injury it has been easy for me to think that nobody understand what I'm going thru. A brain injury makes understanding some situations very hard. Sometimes I recognize the meaning of different situations might not be how I see them. I might perceive it different from what it really means.
Let me make a quick pause to talk about perception. For some reason sometimes people tell me something and I take it the wrong way. They probably didn't mean it the way I took it. The way I perceive things at times is off from the real meaning of the intended message. This has triggered arguments or resulted in feelings being hurt. Now that I understand the perception issue I make myself pause and think before I act. This has helped me understand and really look at the real meaning of what goes on. Impulsivity is tied to this too. At times we are too quick on "jumping the gun" and kind of instinctively doing something without thinking. Like I have mentioned before "knowledge is power", we have to learn to stop and think before we act. Understanding these issues has helped on self control and helped my relationships with family and friends.
Going back to Support Network. Support Network is not limited to family and friends, it is broader than that. Compassionate providers are another very important part of the support. The encouragement, motivation, advice and understanding are one of the most valuable things I have received as support of my providers. We always try to demand the compassion and so many other things from the providers. I ask us today to think about how much effort are we putting in our recovery. As we at times get upset about having a provider that seemed like they don't care, or don't put enough effort on our treatment; providers at times get the same feelings towards a patient that doesn't put effort on his/her recovery. Remember that caring goes both ways.
As I mentioned the perception issue. It is important for us to share our feelings with other in the support network. I always try to avoid to keep things that bother me inside of m,e because as you might have experienced it is very easy to get overwhelmed. Sharing our thoughts and feelings with others greatly helps releasing that pressure and that overwhelming feeling. Don't forget self-control. When sharing your thoughts and feelings think before acting because we have to be respectful and tactful.
When building a Support Network make sure you surround yourself with positive people. People that don't care or that draw us in the wrong direction might be very harming to our recovery. For example, people that are always complaining about things in life or people that are always upset about everything have been detrimental to my healing. I have cut them off understanding that I'm not in position to play around with my recovery. Many times I found out that if it doesn't feel good it might not be good for me. It is not that I'm being selfish or that "everything is about me", it is about recovering and healing as fast as possible.
I encourage you to open up with your providers, family, and friends. Expand your horizons and you'll see how many people are out there waiting to help you.
Another element of the Support Network might be a support group. It is a relieve for me to see that other people share the same symptoms I have. Those are the people that I learn from as they share their coping strategies among other things. In my opinion a group should be conducted with these factors taken into consideration: it has to be a safe place, everybody has to commit to confidentiality (what's said in the group, stays in the group), everybody has to be respectful to others, it has to be volunteer and one person talks at a time. The leader of the group should be able to steer the group, meaning that if members deviate from TBI related things, the leader should have the skill to bring it back on track so the group can accomplish its goal.
I close with this: find a support network, be in control of your recovery (you are the most important element in your rehab), trust others, and if you feel overwhelmed talk to somebody. Involve your family and educate them as well as educate yourself. It makes a difference. And most importantly DO NOT USE THE TRAUMATIC BRAIN INJURY AS A CRUTCH.
If you have any questions or comments and are unable to post them here feel free to address them at tbiwarriors@hotmail.com.
Big hugs to all.
See you all tomorrow.

Friday, July 16, 2010

It's Not How Fast I Get There As Long As I Do Get There

I hope everybody is doing well today. Thank God is Friday!!! This week has been an amazing week for me. God has coordinated many uplifting events. First I had the chance to attend the promotion of my former First Sergeant and very good friend Paul. I will start working for him again on a volunteer basis. I'm so happy he's is giving me this opportunity and that finally after so many month I'm going to start to reintegrate and do what I like to do, to be a Soldier. I don't care if is behind a desk, what I care is that everyday will be a day where I can put my US Army uniform and fulfill a mission. In this voluteer job I will be evaluated on my performance and military skills. Feedback will be given to Mentis so that rehab can be adjusted if need be. Thank you to Paul and Becky for being such a support to me.
At Mentis this week I had my usual therapies and more. Yesterday had a farewell to one of the Soldiers that get treated there. His name is SFC William Fraas (Billy). To say goodbye to him the staff at Mentis planned a special outing. He was given the opportunity to pick a place he would like to go. We went to lunch and after lunch we took a trip to the Wyler Aerial Tramway in El Paso. It was so much fun. I had a chance to talk to Billy and I have to tell you he has a wonderful story, a very inspiring story. The only thing that didn't go too well during the outing was that I rode on the back of the van which caused for me to get motion sickness. I felt very sick. That never happened prior to the BI. The day was so long that at the end of the day when I got home I had to lay down for a few hours. My mental endurance is not the same. It is very hard to sustain a good stamina whenever the day goes over 3 hours. I'm working really hard to get that endurance back. I push myself everyday. Since the injury it has improved a lot. At the beginning it was hard to go over 10 minutes and now I can effectively do arount 3 to 4 hours and if I push myself I can do more. But when I get to the point of pushing myself everything becomes overwhelming and confusing. It's very hard to organize my thoughts at that point. At the time it gets overwhelming, pushing myself has its side effects, it starts reflecting physically, I get headaches, the balance issues increase, occasionally I get shakes or tremors, fluency problems increase among other things. But I see it as if I was training for a marathon. The more I push, the farther I'll get, the more endurance I'll built. It's not easy but I have to do it.
During this week I also found out that the unit I belong to had received tickets to go see Toby Keith in concert at Albuquerque, New Mexico on August 13th. Purple Heart Recipients had priority. I was approach and asked if I wanted to attend the event with my wife with all expenses paid to include transportation and hotel. So I said yes. I wouldn't decline a chance like that to go see a great supporter of the troops and one of my favorite country singers.
At the therapies at Mentis they are starting to incorporate more Soldier oriented things. For example in Physical Therapy we are doing "3 to 5 second rushes" which is a military drill. I have to be able to perform this drill in order to return to duty. Also they are incorporating target scanning while moving to ensure I can maintain my balance. This is a very hard task for me to accomplish because moving my head scanning for the targets gets me dizzy, motion sick and upsets my stomach. But again the more I do it the better I get.
Many probably have seen the video from the National Public Radio (NPR). That video was shot several months ago. Since then I have made big improvement. Even people that see me everyday say that there is a noticeable improvement. I do feel my improvement. Recovery has been a lot of work and perseverance. Speech is the area that's has taken the longest. This area has been slow but I have faith that it will get better. Applying fluency strategies takes a lot of focus and energy. An hour of speech therapy for me feels like I ran a marathon. It is very tiring. But I'm going to keep moving forward and be successful at it.
Well, I hope you all have a great weekend. We'll stay in touch. God bless you all.
If you have any questions or comments I will be glad to address them. My email address is tbiwarriors@hotmail.com

Thursday, July 15, 2010

Key #3: Goal Setting

Hello again!!! I hope everybody is doing good today. Here is the third part of the series of successful recovery from Traumatic Brain Injury. All I will mention here is based on my personal experience as a patient.
Before I go into the subject I want to mention real fast about me and this blog. One of the areas less affected with my BI is writing. That is the reason I started this blog. It began with the desire to help others and at the same time I used it as therapy to strengthen my writing skills. It does take me hours to write every post. Since I still have trouble with attention, concentration, and mental endurance I have to write a little bit then put it down rest and repeat the cycle again several times until is completed. After I feel is completed I use third parties to ensure is grammatically correct and that it's coherent. If there are any corrections I get told about it and I fix them myself. This helps tremendously in my recovery.
So, back into subject. Goal setting... At the beginning of my rehabilitation during my different therapy sessions nobody ever told me about goal setting. This first 5 months were at a military medical facility. It felt like I was attending the therapy but didn't know which direction I was heading. I went through every exercise just doing them by the numbers without knowing clearly what I was trying to achieve. At this point the providers might have had an idea of goals but it was never communicated to me. I was not part of my treatment team.
Later, as I began in Mentis, I observed that they would include me on the treatment plan. They made me feel that I was not only a subject but I was the center of my rehabilitation. At the beginning they discussed what were my goals, they asked what my plans for the future were and what I wanted the therapies to focus. They asked what skills I needed to perform my job in the military and also they asked for a job description. All this allowed the rehab treatment to be tailored to my needs. The goals covered from treating the obvious impairments to retraining the brain to perform daily living tasks and to perform job related skills. All the goals were clearly outlined and explained. They briefed me on exactly what I needed to accomplish in all different sessions. These goals are revisited at the most every 30 days and some times more frequent than that. The path I had to walk was very clear and I knew exactly where I was heading. All the goals are attainable.
Besides these rehab treatment goals being briefed and discussed, in Speech Therapy they actually taught me how to set goals for myself. Even on my life out of rehab I have to create short and long term goals in order to accomplish even simple achievements. It is extremely important for me to set goals for my day to day living. Being able to see a clear path is crucial in achieving success. It also helps to maintain an organized life, it gives a clear direction.

Wednesday, July 14, 2010

Key #2: Provider Compassion

Hello again. I hope you all are doing ok. This is the second part of the series of postings I will do in regards to what I think are the key elements is successful BI recovery. Again, this is based on my personal experience and what has worked for me.
Throughout my recovery I have seen many medical providers, ranging from technicians to doctors. Some have been great and effective. Others have been not great at all leaving me desiring so much more care. I have seen many providers that make me feel I'm just another one breathing their airspace, it seemed like I was bothering them. Sometimes there I have seen lack of planning, for example, going to therapy and they didn't know what we were doing at the session and not listening to me among others. Never with those providers I knew what I had to achieve to be successful. For me it was like walking with no direction. At times it felt like the providers were in a throne and I was like a servant that had to praise them. Now, if research was in the air, they were quick of getting interested, like there was their chance to make a name. Some of my providers have being totally pathetic.
Now, there has been the other side of the coin. I've had many providers that do care. They not only see themselves as a provider, they also project themselves as a healing tool. Keep in mind healing from a brain injury is no only taking care of the injury itself, it is taking care of the person as a whole. Many of this other provider (I will refer to them as the Good Providers) many times go out of their scope of duties to take care of the person in a holistic way.
I see that treatment and therapy have better results as this therapist or doctors sit down and listen to the issues presented. For example, many times my different therapists at Mentis listened to other issues, ie emotional, etc. They either do some kind of counseling themselves or refer me to the proper path. Nine times out of ten what they say is enough to resolve any present issues.
As a Soldier, my physical fitness reflect on me emotionally, so the more in shape I am the better I feel. Another example, usually on neuro rehabilitation a physical therapist focuses on dizziness, vertigo, balance, and any other physical effects of the BI, well my Physical Therapists knows how important it is for me to be physically fit and returning to duty so at times they would take me on three to four mile runs. They do not have to do that, but since they are so committed in my goals and in treating me as a whole they go out of their scope of duty to make this happen for me.
Yet, another example, Speech Pathologists normally concentrates on fluency, memory, attention, concentration, and executive functioning. Well, my Speech Pathologists also focuses on my confidence. After the injury I lost most of my confidence, either because of the fluency problem or just for the fact that I couldn't do things with the same effectiveness as before the BI. My SP is taking care of building my confidence again. I do not expect to be the same as before, but is do expect to be pretty close and thanks to them I am reaching that goal. In order to achieve a successful recovery, the providers at Mentis and I set goals that are discussed and planned between us. It is not dictated to me, it is a team effort. I am part of that team.
All of my providers at this time, they are open to listen to any issues and in dealing with them. There are issues that are emotional. There are emotional stages on recovering from a BI. I had learned that at Mentis. There is grieve, mourn, sadness, acceptance, etc. These are part of the healing process. It is because the injury caused an abrupt and sudden change in my life. I learn about the emotional stages of healing at Mentis. This feeling are nowhere related to combat experiences. I understand this now. It is very unique in the Army that any emotional issues are PTSD. So, by them not understanding the problem leads to a delay in resolving issues. Thanks to all the providers I have right now most of the issues are being resolved as they become present.
If you are a provider reading this blog, my message to you is, your compassion, understanding, and listening skills add effectiveness to you expertise. Your patients are human beings like you. Not because you have more academic degrees means you are more than them. Be humble and level with your patients. Making a personal and emotional connection with your patients will help the recover faster. By achieving this you are not only healing the brain injury you are healing the whole person. Do this and you will have a long lasting impact in your patients lives and they will never forget you.

Tuesday, July 13, 2010

Key #1: Independence

Hi everyone. I want to create a series of postings on some of the key elements of successful recovery from a Brain Injury. All I will mention here is from my perspective and based on my own experience. I do struggle with my brain injury in the present and have not fully recovered.
The top thing I encourage any brain injury survivor is to maintain their independence as much as possible. Of course in some more severe brain injuries is hard to maintain independence as some survivor really cannot perform certain tasks. During recovery the more I do independently those tasks that are harder to perform the better results I get. I figured out that for me the more I do this tasks the faster I get use to do them. At the begining, for some tasks I either needed assistance or required a heavy level of concentration. Now as I do them more I find myself doing those tasks with less concentration and effort. Basically, I see it this way, the more repetition the faster the brain gets retrained and the easier everything become.
So, if you are a brain injury survivor I highly encourage you to put forth effort in maintaing your independence. It is not easy, but remember nobody said this was going to be easy.

HEALING AND RECOVERY STARTS WITH YOU AND NOT WITH THE PROVIDERS.

Monday, July 12, 2010

Are you...???

Are you a Traumatic Brain Injury Survivor? Join me and share your story. You can contact me thru email at tbiwarriors@hotmail.com.
Sent on the Sprint® Now Network from my BlackBerry®

Many Thanks To

Hello everybody. I know again it has been quite a while since I wrote in here. There has been many things going with me that has been taking the time away.
I want to thank a few people that have been supporting me in so many different ways. I apologize if I forgot somebody, it was not intentional. So here it goes...
To God for walking the healing road with me, and to Roxana for being so loving, understanding, caring, and supportive. Roxana I couldn't get thru this without you, I Love You, you are my biggest blessing. To my family, mom, dad, Zandra and her family, my in-laws, Melissa, Vitin, and Janet and David. To all that have really taken care of me Dr. Petri, Dr. Harris, Jennifer, Amy, Erika, Ismael, MS, BH, HT, JW (you all know who you are) and Erika C. To my former command, friends and their family; 1SG Crow and Becky, CPT Lockhart, CPT Porter, Jermane, Raymond, Nick G and Jake. To all the providers and staff at Mentis: Jose, Eric S, Jimmy, Tessa, Suki, Claudia, Vanessa, Maribel, Raquel, Johnny and Stephen. To the NPR and Propublica reporters: Daniel Zwerdling and T. Christian Miller for helping get so many Soldiers voices out. To KFOX reporter: Derek Shore. To Congressman Teague and his staff for choosing to be our voice. Finally, Simone, thank you for your letter and support. You have made an impact in my life.
I thank God for providing me with so many good people around me. Each of the names I mentioned here have been a great support during my recovery. Without you all I could not have made it. I will always be grateful for you frienship, compassion and support. You all have been great!!! I have no words to express how thankful I am that you all are in some way conected to me. Hugs to all!!!
Sent on the Sprint® Now Network from my BlackBerry®

Wednesday, June 16, 2010

An Awesome Day

Well, I know I haven't written anything in a couple of week. Ever since the media story on TBI came out I have been busy and emotional. I think about how could this have happened to me. But at the same time I feel that I rather go thru this myself instead of somebody else. I have the support from family and friends that really gives me the strength to drive on.
I'm not writing too much about my treatment because I don't want to make. this blog redundant and boring. I recently started taking a medication for attention and I got to tell you it works like a charm. I have been resistant on taking medications in the past but I am glad I gave this one a chance. I have made some great progress in the last month. It feels like I broke the wall that I hit. My balance is almost to a minute which I am very excited about. It becomes frustrating when I get dizzy and get vertigo. At times it felt that I couldn't do a lot of things. Jimmy, the Physical Therapist, is working on retraining the brain on what movements the body has to do to maitain balance. So, yeahhhh, we have moved up from the YES and NO exercises.
During Occupational Therapy, Raquel put me on the computer to do some attention sustainment word games. The game consisted of a lot of syllables scrambled and I had to make words based on a given subject. Doing this was a little bit challenging but even though I was below the median I think that I will get better at it. Last night before going to bed Roxana and I did about 5 of these games. She had to slow down for me. Man, she's fast.
I had 2 Speech Therapy sessions. The first one was fluency, which I honestly don't like. I feel embarrassed at time. But I did drive on and did it. The second one was cognitive-memory. On this one I was very impressed. Claudia read me some articles and she asked me questions about it after. I was amaze to see that my memory is getting better. I was able to recall an average of 80% without help on the 1st article. This article was kind of story telling like. The second article was informational and I had a harder time recalling it. But I think I recalled about 70% independently. It was a great session and I felt a big sense of accomplishment.
While I was at Mentis yesterday I was approached by Jose, the administrator and he handed me a letter. This was the most special letter I have received in my life. It was from a lady that I had talked on the phone last week. I have no words to describe what I felt. Feeling the support from somebody that you don't know its amazing and life changing. Simone, thank you. I will alway be thankful from what you and your family did and I will always treasure that letter.
Today, we have the support group here at Ft. Bliss. We are having a workshop on TaiChi. I'm really looking forward to it.
Until next time.
God bless you all.
Sent on the Sprint® Now Network from my BlackBerry®

Thursday, June 3, 2010

BACK: Renewed and Relaxed

Hello, I've been away for a few weeks because I finally took a vacation. Roxana and I went to Disney World to celebrate our anniversary. It was an excellent trip. We were so blessed as we received an upgrade from Disney to stayed at a concierge area at the Grand Floridian Resort and Spa. Upon our arrival to the room Roxana found in the room a floral arrangement, personalized towels, and rose petals forming a heart that I had ordered a few weeks ahead of time. The room was big and comfortable. During our stay there we had dinner at a few of the Signature Restaurants on property. We watched the fireworks from different restaurants on first row. We watched them from the California Grill, Citricos, Cinderella's Royal Table and Narcoosee's.
It was good to stay on Disney property because it allowed me to go back to the room and rest on park days. We couldn't do to many parks because I get tired to quick. Our anniversary day celebration started with a spa treatment. It was awesome!!! The we had dinner at Narcoosee's where they gifted us with a cake and personalized menus.
Also, on during my vacation I was able to see my family and spend a few days with them. It's so bad that I had to come to an end. But I had to get back to business and get into rehab.
This week as I get back to rehab I'm starting some extended hours of treatment. Like I said before now I go Tuesday, Thursday and Friday. Now is pretty much full days. I'm looking forward for this next few months to see the challenges ahead and see success.

Until next time.

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Wednesday, May 12, 2010

After a Long Wait and more...

Hello everyone. Hope everybody is doing fine. I know I didn't post anything for a few weeks because I have been busy. I the past couple of weeks I have been at Mentis several times having the regular therapies. I had my reeval about a week ago and they decided to extend me for another 3 to 4 months. I don't know the exact end date yet. At times I feel frustrated because I'm so close but yet so far. I'll keep having my faith in God that it will not take that much longer and I will be able to return to duty soon.
Friday I attended the uncasing of the colors ceremony for the 4th Brigade, 1st Armored Division at Biggs Army Airfield. It was a great ceremony. There was the whole brigade after being back from Iraq. I was so happy to see Nick, my gunner that got injured at the same time I was injured. Seeing him standing tall brought a lot of pride to myself. After the ceremony I talked to Paul and LTC Gallivan. Also, I saw CSM Yuraska when he approched me for a hand shake. I felt the support they gave me that day. A lot of time I felt like they had forgotten about me and it saddened me. But friday I felt that that wasn't the case. I am proud to have served with them in combat.
Last Saturday I did the Wounded Warrior Walk sponsored by the group Bridges here at Ft. Bliss. It was a 5K walk were military and civilians participated. It was fun. I walked it with Roxana.
On Sunday I went on a walk around the neighborhood with Roxana. Oh, it's so relaxing for me to go outdoors. It is the best medicine for me. We walked for about 5 miles. It took us a long time but it was really fun. As you all know I recently started running and doing more physical training. I'm not where I was at before the injury but I know I will get there. It is so wonderful to be able to either run or do elliptical training. The more fit I feel the better I am physically and emotionally. When I wasn't able to workout it played a significant role to how I felt. Plus, it gave me a sense of accomplishment and achievement.
Last Wednesday we had the TBI support group. We had about 6 Soldiers showing up. That day it was kind of like a venting session where all the participants expressed how they felt. We talked for about 1.5 hours. It was great. At the end of the group Dr. Podila did acupuncture on the Soldiers that volunteer for it. Acupuncture therapy is by far one of the best treatments I receive. It takes the headaches, tremors and other pains away. I highly encourage all Soldiers suffering from a brain injury to try acupuncture, it really helps.
Yesterday I had dinner with 5 Soldiers I used to serve with. We went to Red Lobster. The time we spent together was great. Seeing them back in the States makes me happy and brings closure to me. After being Medevac'd it has not been easy to deal with the fact that I felt like I left my Soldiers behind. Everyday I thought "I'm here and they're there. I should be there too with them". I got to mention a good friend of mine, Jermane. Thanks brother for always staying in touch with me and for being there for me.
Last night I didn't have a good night. I slept probably for about 2 hours because my left leg was numb all night. It was a painful numbness. Apparently it comes from an injured disc on my lower back. The chiropractor will see me today to try to help me out with it.
Later.

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Tuesday, April 27, 2010

A Few New Things

Hi, everyone. It's been a few days since my last post. Since the last post my days have been pretty much a repetition of past days. I had two appointments witht the chiropractor, two appointments the acupuncturist, and Mentis today. The highlights of this few days have been that Dr. Petri did needle acupuncture on some knots I have on my muscles. That was painful, but at least it took care of one of the knots. Tomorrow I will go for another treatment.
Last Saturday I began to use Androderm. This is a testosterone patch. It is suppose to bring my testosterone levels back up. Apparently my pituitary gland got affected with the injury because different hormones and vitamins are extremely low. My Primary Care Management order me these patches to try to bring the testosterone to normal levels.
Last Saturday too, I went to a Pranic Healing seminar with Dr. Podila and Mr. Greg Otto from the Warrior Transition Clinic. Pranic Healing is a method of healing using the energy field in the body. It was quite amazing. It was a long day on Saturday. It was overwhelming for me. So overwhelming that on Sunday I had vertigo and headaches. I could not wake up until late.
Today the day started with a run with Jimmy. We ran slightly over 2 miles. It wasn't a good run for me, I was not feeling it. Then during speech therapy we worked on some reading comprehension and fluency strategies. In occupational therapy, Stephen, did a reeval on my grip strength and is up to about 120psi per hand. That's pretty awesome. So much improvement in so little. I'm telling you effective therapy reflects in amazing results. Finally during Physical Therapy we worked on the balance issues with vestibular exercises (head movements, walk, and ball throw). Today I had to close my eyes on some of the exercises and I got to tell you is so hard to keep my balance. When I realize that I am loosing my balance its already too late because when I open my eyes I am too far to the left or the right and at that point is hard to bring myself to balance.
Tomorrow we will have the second meeting of the TBI Support Group at the Warrior Transition Unit. I will let you all know how it goes.

Thursday, April 22, 2010

Good Way to Start

Hi everyone, today was a Mentis day as you all know. The day started as usual with Speech Therapy. Vanessa had a family conference so for the first time I worked with Wendy. Wendy is another speech pathologist at Mentis. We started using the motronome. The metronome is a computer that has some kind of sensors that all together work with coordination. I use to hate it because I didn't do to good at it. I was always well below the average. Today, all that time spent with me in the metronome paid of, because when Wendy put me on that machine today I was above average on most of the tasks measured. I was so happy. After the metronome we sat down to work on some reading comprehension. I started good for the first 2 paragraphs. I had to write things down but that's ok, it's all about compensating strategies. Once we got to the third paragraph is when I hit the brick wall. From there on it was very hard to comprehend what I was reading. With Wendy's help I was able to accomplish the task.
Physical Therapy today started like any other session. YESs and NOs. Following that I had to walk on the treadmill giving sidesteps. It should help improve the balance. And we finish with some other side step exercises in the hallway.
During Occupational Therapy, Clint and I had to put another of those electrical circuits, but this time I was in a room and he was in another. We were using handheld radios to communicate. This will help us with communication skills. We were successful at the task.

See you tomorrow!!!

The Pilot

Well, finally today we had the so anticipated TBI Support Group at the Warrior Transition Unit. It was a total success. We had about 10 Soldiers showing up. It was definately amazing.
The group met at 1430. About 3 hours before the group, Dr. Podila, Roxana, Marilyn, and myself went to the WTU clasroom to set it up. We had handouts, pastries and drinks, along as forms that the participants filled out to let us know what they wanted in the group.
Once it started I went ahead and introduced myself to the group, and gave a little introduction on how the group came to be. Everybody within the group had a chance to give a little introduction about them. COL (Dr.) Petri was the guest speaker. He talked to the group about Brain Injury, Integrative Medicine, and he thanked everybody for their service. All the participants in the group are veterans that were wounded while deployed. After Dr. Petri Roxana got up and talked to the group about TBI from the significant other perspective.
During the group session we had a TaiChi presentation by Mr. Otto. He is a Social Worker at the WTU Clinic. I have never done TaiChi, but I did like it a lot. I'm thinking about taking some classes to learn it. After Mr. Otto gave the presentation everybody in the group got on their feet and we practiced some of the basic TaiChi skills. It was very relaxing.
Dr. Podila introduced to the group the Brain Yoga. It is a technique that allows the energy in the brain to get balance. It was very relaxing also.
Throughout the session we gave away 3 prizes to randomly selected participants. They were excited about it.
In my opinion what makes TBI Soldiers come together is when they can discuss their symptoms with others. So the syptom for the day was "feeling overwhelmed". We went around the circle and everybody had a chance to express how is it when they feel overwhelmed and how they deal with it. One of the intentions behind this is that Soldiers can learn from others about the different techniques that help them with the symptoms.
Overall it was a success. Thanks to Dr. Podila, Roxana, Dr. Petri, and Marilyn. THANK YOU all for the time and effort you put to make this happen.

Tuesday, April 20, 2010

Mentis=Motivation

Nobody said this healing process was going to be easy. But one thing is for sure, "it does get BETTER".
First, I'm driving again. AWESOME!!!
Today started great with a 3 miles run. As time passes it getting easier. I ran this morning with the Physical Therapists, Jimmy and Tessa. It was really fun to do that this morning. GOOD GAME!!!
After the run I had Speech Therapy. Speech Therapy is the most challenging therapy for me. Today Claudia and I worked on reading and comprehension. This task is hard. I started to get frustrated because here I am almost 10 months after the injury and it's still so hard to comprehend any reading. The way we started was extremely difficult. Claudia immediately noticed my frustration and adjusted the session. She focused more on some strategies to help me comprehend what I was reading. The acronym for the strategy was PQRST which stands for Preview, Question, Read, Summarize, and Test. Once she explained these strategies to me I continued to read with her help. In the end my frustration was almost gone. THANK YOU CLAUDIA for taking the time with me. At the end of the session we went over some speech fluency exercises. Today she gave some words that I had to pronounce in three stages. Stage 1 was pronounce the word. Stage 2 was adding the word "The" to the word previously given. Stage 3 was the "The", the previously given word, and aadding an adjective to it. I did good on this exercise. It will all get better before it gets worse.
After Speech I had Occupational Therapy. Here Stephen and I worked on divided attention. The execise was to identify songs on the radio while at the same time I was doing a word task on the computer. I think I did good on this one too.
Following OT I had Physical Therapy. As usual Jimmy worked on the YESs and NOs for about 10 minutes or so. Then we proceeded to work on some walking exercises for balance. This time I had to do some of them with my eyes closed and some with weight. I felt so uneasy doing that but I did it.
At lunch today we had some tostada, guacamole, refried beans, pico de gallo, sour cream, and fideo. It was delicious. This time the portion was pretty close to a man's size portion. YEAH!!!
At the end of the day we had the Men's Support Group. We did some team bulding activities. It was fun to do.
Tomorrow starts the TBI Support Group that I'm putting together with Dr. Petri, Dr. Podila and Roxana on Ft. Bliss. We'll let you know how it goes.

See you tomorrow.
Sent on the Sprint® Now Network from my BlackBerry®

Monday, April 19, 2010

New Beginnings

I has been a few days since my last post. Well from Friday until today, I have had 2 Chiropractic appointments, a vascular appointment, a neurology appointment, and an acupuncture appointment. The chiropractic appointments have been pretty much the same as the one I described on an earlier post. It is amazing how Dr. Harris finds exactly were the pain is on my back and neck just by simply touching and feeling the spine and surrounding areas. My pain gets so much better instantly after treatment. As you guys know already, he treats the balance problems I am having. I can say he has magical hands, because after he does treatment for balance it improves significantly. Eventually it goes back the problems come back but with the continuous therapy is expected to resolve.
During the acupuncture treatment, COL (Dr) Petri does ear accupunture/nerve stimulation. He treats different pains, like headaches, back, temporomandibular joint, etc. His treatment is the reason why I am not taking any other medication than Celexa (for mood swings). His treatment is amazing. He also does it for the tremors. They get better almost on the spot. It is a great treatment.
In the past few months providers suspected that I had some kind of problems with the vertebral artery due to the balance issues, vertigo, and dizziness. I had an ultrasound and a CT scan on the area to test for it. That's the reason I went to the Vascular Clinic last Friday. They check all the results and "good news" it is clear. Thanks to that I can go back to driving again.
It has been a little over a month now that I haven'n been able to drive. I'm usually very independent and since I'm not driving I have been depending on others for help. The good thing is that friends and family have always been there for me, help was always there. I am so blessed with having a wife like Roxana, she's so supportive, caring, and understanding.
Also, last Friday I had the neurology appointment with Dr. Iqbal in Las Cruces. He's also a great doctor. He understand that I'm on the right track with the rehabilitation. He'll see me again in 6 months.
The new TBI Support group will start on Wednesday. I have been working on developing it with a lot of help from my wife, Dr. Podila, and Dr. Petri. Well tell you the truth they have done most of the things, I've been doing what I can. But it is great to see that I can still do meaningful things and that a brain injury is not the end. The group is supposed to start with about 90 Soldiers. We will do an introduction, and Dr. Petri will do a mini lecture on what to expect after a brain injury.
I am very excited about this group!!!
This next Saturday and Sunday, I will be attending a course on Pranic Healing with Dr. Podila. I really don't know what is "pranic healing", so I will let you guys know what is up with that!!!
See you all tomorrow!!!! Good night!!!!

Thursday, April 15, 2010

Almost Lost Motivation

Good evening everybody. Today has been a very long and exhausting day. I was at Mentis this morning. All my Thursdays at Mentis have the same schedule. It starts with Speech Therapy at 9am, followed by Physical and Occupational Therapy at 10am and 11am, respectively.
Let me start with Speech Therapy. Normally I get individual therapy but today because one of the speech pathologist had a last minute meeting I had to join a group of 2 other Soldiers, Billy and Brandon. It started out kind of rough because Claudia began asking questions of memory strategies that we had to try to answer out of the top of my head. I would hear Billy and Brandon giving out the answer with no problem. I knew from the start that I wouldn't remember so I was trying to listen closely to them to refresh my memory. I was the las one to answer and I got to tell you inside my head I was thinking "damn, I don't remember this". So anyway I could give some answers with no problem but I needed cues for others. Following this was an activity that required us to maintain a conversation for 5 minutes with Classic Rock music on the background. This is extremely overwhelming. At times I felt confused because I had to filter out the music so I could pay attention to the conversation. This is what we call Selective attention. After the conversation we had to read a newspaper article with the same backgound music. Needless to say, it was overwhelming. I lost count of how many times I had to go back and read the same things again because I couldn't focus. So in the end I chose key words that helped me recall the information. At the end of the session we had to write down on a piece of paper what were the types of attention, the memory strategies, what we had talked about in the conversation, and what the newpaper article said. I got a 100% on this part. YEAHHH!!!!
For your information I will list the attentions and strategies:
1. Types of attention
a. Concentration
b. Selective
c. Alternating
d. Vigilance
e. Divided
2. Memory Strategies
a. Association
b. Repetition and Rehearsal
c. Visualization
d. Compensatory (which would be like writing things down)
At the end of the Speech Therapy Session, Dr. Spier, the medical director for Mentis walked in the room. He told me something that was uplifting for me. He said that there has been recent research about how neurogenic stuttering has been found on blast injuries. He explained to me about a part of the brain that gets affected in some cases that in turns affects the speech. I can't complaint about today's Speech Therapy because we didn't do the fluency part, which you all know I don't like.
After Speech Therapy I had the Physical Therapy with Jimmy. We confirmed that next Tuesday we are going to run at 8am. Tessa, which is another therapist will join us that morning. As I walked in the PT area I noticed they were playing 70's disco music (BeeGees and music of that sort), oh my God!!!, I thought I had to bring the leg warmers today for therapy. LOL. Well shortly after I walked in we started the therapy session. Today we worked on balance and dizziness. We did the regular excercises for balance, which I call "YESs and NOs". The YESs I can do for quite a few minutes, which it has been a big improvement because I think when I started I was able to do for about 30 some seconds. The NOs are more dificult for me. I was able to do them for almost 30 seconds, which anyway is an improvement because when I started at Mentis I could do them for less than 20 seconds. After the YESs and NOs we did some walking excercises that improve balance. Once that was done, Jimmy took me to the basketball area to play a little bit. Me basketball player!!! Yeah right!!! It was a fun way to end the therapy session.
Finally at 11am I had Occupational Therapy. Today Stephen had one of the guys give me auditory instructions that I had to follow to put a small electrical circuit together. I did it. I was able to follow the instructions the proper way. I lacked on feedback communication. Stephen will start making this task more challenging in the next sessions, we'll see how that goes.
At the end of the day, Mentis provided transportation for me because my wife was at meetings all afternoon and could not pick me up. I can't wait to start driving again.
Tomorrow I have 4 appointments. My day will be as follows: 1. Physical Medicine, Vascular, Chiropractor, and Neurology. Full day. I will let you know how it goes.